Patient-Centred Asthma Management Questionnaire (PCAMQ)

Titel onderzoek Nederlands

Patient-Centred Asthma Management Questionnaire (PCAMQ)

Titel onderzoek Engels

Patient-Centred Asthma Management Questionnaire (PCAMQ)

Onderzoeksvraag

Development and validation of the Patient-Centred Asthma Management Questionnaire (PCAMQ)

Onderzoeksinstituut

Universitair Medisch Centrum Groningen

Samenvatting van het onderzoek

Introduction

Many patients view their asthma as a series of acute episodes, rather than a chronic disease, and patients tend to treat their condition episodically.

Patients appear to rely on their short acting bronchodilator for the management of their asthma because of the immediate effects, rather than the treatment of the underlying inflammation by inhaled corticosteroids.

The overarching objective of the Patient-Centred Asthma Management Questionnaire (PCAMQ) is to identify individual patient perceptions and practices in relation to asthma and its treatment (in particular overuse of reliever medication) and uncover the reasons behind this behaviour.

Aim of the PCAMQ

To create awareness in patients and health care providers for the reliever overuse  and ICS underuse and pave the way for more effective regimens to reduce the number of asthma patients with poor asthma control.

Development of the PCAMQ

The development according to FDA guidelines consists of item generation (including patient input), item reduction and validation.

This document describes the item generation in detail, and outlines the further steps to develop the PCAMQ according to FDA guidelines.

Item generation

Questions for the PCAMQ will be derived from experts, literature and qualitative research. This qualitative research will be performed in the Netherlands, UK, Germany, France, Italy and Canada in focus groups (36-48 patients in total) and interviews (about 48 patients) in all asthma age groups.

Timeline

This 6-country, high quality qualitative development according to the FDA standards is planned to be completed 8 months after initiation.

Startdatum onderzoek

Type onderzoek

Ontwikkeling vragenlijst

Aard van het onderzoek

Kwaliteit van zorg

Design van het onderzoek

Kwalitatief onderzoek

Onderzoeker

B.M.J. Flokstra- de Blok

Contactpersoon

Annika van Dijk

Andere betrokkenen

  • J.W.H. Kocks, projectleider
  • T. van der Molen, full professor
  • A.E.M. van Dijk, student

Beantwoordt het onderzoek een geprioriteerde kennislacune(s) uit de onderzoeksagenda huisartsgeneeskunde?

Nee

Voortgang

Afgerond onderzoek